A Special Night

A Special Night
Several Meghan’s Light board members spent an incredible evening surrounded by passionate and dedicated cystic fibrosis advocates –  former NFL quarterback Boomer Esiason (Boomer Esiason Foundation),  Governor Charlie Baker, Lieutenant Governor Karyn Polito, Congressman Richard Neal, and a fabulous singer with CF, Julia Rae – at an event in Boston to celebrate the [...]

Visit with Vertex CEO

Visit with Vertex CEO
It was an honor to spend the day at Vertex Pharmaceuticals as Meghan’s mom, Betty Hukowicz, joined Dr. Jeff Leiden, Chairman, President, and CEO of Vertex, and the uplifting Emily Schaller to discuss the history and impact of cystic fibrosis in their lives before an audience of 300 people in an auditorium and additional Vertex [...]

Vertex New York Times Article

Vertex New York Times Article
A cystic fibrosis (CF) article was recently released in The New York Times titled, “The Impact of Cystic Fibrosis is Far-reaching” sponsored by Vertex Pharmaceuticals. Two of our board members, Meghan’s Mom, Betty Hukowicz, and Meghan’s cousin, TJ Shea, were featured in the article. Their willingness and bravery to share their stories (“Tears in a [...]


It is an honor to announce that Meghan’s Light was one of four recipients in the country and the only organization in Massachusetts to receive the 2017 Cystic Fibrosis Foundation Impact Grant for its newest initiative 65 Wellness Wishes. Meghan’s Light 65 Wellness Wishes grants 65 health-focused awards for wellness memberships and activities in and [...]

Meghan’s Light Invited to Vertex Phar...

Meghan's Light was honored to be invited to the Vertex Pharmaceuticals 10-Year, $500 Million Corporate Giving Commitment on Oct. 17 at their Boston Headquarters and Research & Development Site. Vertex Pharmaceuticals has been a strong supporter of Meghan's Light initiatives. At the event, Meghan’s Light President Linda Kenny and Board Member Diane Ciolkos stood alongside Boston Mayor Marty [...]

Frank Deford Dies at Age 78

Meghan’s Light mourns the loss of Frank Deford whose daughter Alex lost her fight to CF at the age of 8. Frank Deford was a great sports journalist and President and CEO of the Cystic Fibrosis Foundation. He was a longtime commentator on NPR’s Morning Edition and a sponsor of the Meghan’s Light 5k/Family Fun [...]

Wellness Wish Updates

Programs with Baystate Medical Center and Boston Children’s Hospital

Over 230 Wishes Granted in 85 Cities and Towns over Seven States

Cystic Fibrosis Foundation Grants in 2017, 2018, 2019

Nearly $225,000 Raised in Five Years!


Our Mission

The mission of Meghan’s Light is to support finding a cure for cystic fibrosis and to inspire hope and courage in patients, families and communities impacted by the disease.

Countdown to Race Day - September 19, 2020